Managing Parenthood while overcoming brittle bones with a courageous baby

There are children who come into this world to teach us the value of life and the importance of true love. A loving mother in the United States knows this well, as she touched the hearts of people on social media when she shared the beautiful story of her child made of glass.

When Abby Storey was 28 weeks pregnant, her obstetrician informed her that the baby had osteogenesis imperfecta, a genetic disorder that causes brittle bones, also known as brittle bone disease or glass bone disease.

Jackson Storey was born via cesarean section on March 17th, weighing three kilograms. However, due to his condition, doctors were uncertain if he would survive. He was immediately taken to the neonatal intensive care unit, where he experienced countless fractures in his arms, legs, AD and ribs.

“They immediately took him and worked on him. He was stable, and they were taking him to the NICU, so my husband went with them and kept in touch with me,” the mother said.

Abby had to come to terms with not seeing him right away but had to wait for eight weeks. However, despite that, she arrived home in Wichita, Kansas, filled with excitement and hopes that everything would turn out well. Each passing day was an achievement and gave her the strength to carry on.

“I just remember feeling that whether he lived or not, we needed to be at peace. If he needed comfort when he came out, that’s what we would give him. If he needed to fight, then we would fight with him,” said the resigned woman.

The little one is a charming angel, barely cries, and is incredibly sweet and calm. Despite being so small, he is remarkably intelligent and cooperates with his mother, who is immensely happy to have him. Each day represents a beautiful life experience with her son.

“He really doesn’t cry very often unless he has a fracture, and even then, his behavior remains calm and sweet.

He knows how to maneuver his body for you. You have to lift him in a certain way, very flat, wide… he will lift his shoulders so you can slide underneath him. It’s insane how intelligent he is. You can see it in his eyes,” explains the proud mother.

Jackson is becoming more comfortable and greatly enjoys the company of his older sister, Brooklyn, who is 3 years old. As for Storey, she seeks to connect with individuals who have osteogenesis imperfecta or parents of affected children to raise awareness about the condition.

And meanwhile, the little glass baby continues to smile, spit out his pacifier, and grow surrounded by the love of his adoring family.

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