Virsaviya Borun Goncharova is from Russia but currently lives in the United States. 11 years ago, she was born with an extremely rare condition and now she still has to live with it.
Accordingly, right from the time she was in her mother’s womb, Virsaviya was diagnosed by doctors with Cantrell’s pentalogy. That is, the heart grows outside the chest. This is an extremely rare congenital abnormality, the incidence is 1/1,000,000 people.

When she learned about her child’s unusual development, Virsaviya’s mother, Dari, was very sad. However, the couple still decided to have a child.

“Doctors told me that my daughter would probably die while I was pregnant or during birth. But with what is happening before my eyes, I can only say that Virsaviya is truly a miracle.” and I love Virsaviya very much. Virsaviya is unique to me. One of the 1 million most special people in this world,”  Dari said.

Virsaviya with her mother and younger brother.

This year Virsaviya is 11 years old and she is still living happily, optimistically with her special heart. In 2015, Virsaviya’s parents took her to see specialists to have surgery in the hope of helping her daughter have a normal life.

However, due to the effect of high blood pressure on the arteries in the lungs, this was not possible. After that, Virsaviya’s condition forced her to stay in the hospital for a long time.

Virsaviya’s younger brother developed normally.

Currently, every time she does physical activity, she needs to use an oxygen generator. Virsaviya also has to be very careful when having fun with friends, because even a slight collision will hurt her heart because it is located right under the skin.

Even though life is difficult, Virsaviya is always optimistic and loves life. ” Sometimes you may encounter some difficulties when the oxygen level in your blood drops, causing you to feel dizzy and your health will be seriously affected.

But I will always try to maintain my life and singing and dancing activities with my friends. I really like this.

2020 may have been a very boring year for the whole world because of the impact of COVID-19 and we couldn’t go anywhere or do anything, but I chose to spend more time with my brother and family. family. I found that really great.